I knew I needed genuine, educational support when my son was diagnosed with a heart defect. I reached out to the support group Heart Friends and found relational interaction, practical advice, educational resources, and some much needed encouragement.
No one tells you how CHDs can so be alienating. They can make you feel so alone even when you're with your closest friends and even your family. That is the reason I joined Heart Friends and is one of the reasons I started this website. If you feel alone now in the diagnosis of a CHD, you are not alone. There are many who have gone before you, who stand beside you, and who can uphold you. Reach out.