Today we celebrate the life of Aidan. He has been rescued by his Savior, free from earthly sufferings, for 13 years now. Aidan had a series of complicated CHD's including Pulmonary Atresia, Transposition of the Great Vessels, AV Canal, and Heterotaxy.
Aidan's story provides a mysterious kind of hope.
His mother, Lisa, changed the way I looked at things. You see, when John was diagnosed with a severe CHD, I'm ashamed to admit that I was initially very selfish. I wondered how I was going to manage being in and out of the hospital. I wondered how I was going to keep our family together. I wondered if we could afford it. I wondered if anyone would visit me.
Lisa's gentle encouragement changed my perspective.
All she said was, "Taking care of Aidan was the best time in my life."
Her words quickly made me refocus. Caring for these children gives us a break from constantly thinking of ourselves. It helped me understand my calling as a mother to a critically-ill child. Caring for these sweet babies is nothing but an honor. It's a front row seat to something mysterious... something beyond us.
"It is better to go to the house of mourning than to go to the house of feasting, for this is the end of all mankind, and the living will lay it to heart." Ecclesiastes 7:2